I wanted to know if any body here has experienced or know someone who has experienced having a fetus with congenital heart disorder. I know someone who's LO was checked to have TOF at the 20week scan. Fetal cardiologist are looking into it and have recommended a heart surgery when baby is born. How bad is this disease, are the surgeries effective long term, what are the sideeffects and in general what to expect at best and at worst..??? Please help with any information any body may know.