Baby Has Heart Problems, What To Do:-(

sanjuruby3 · May 17, 2024

My Brother is having baby after long time and now we were all so happy . suddenly at 5th month found out that baby has heart problems (hole in heart) and small atrium and few other issues. His brain and body development is healthy. Doctor suggesting surgeries after birth ( at 2 and chances of survival are less).

There are more appointments and doctors are also talking about terminating pregnancy if chances are 70%

We are all so disturbed at this point. Does anyone have any experiences with doctors or such conditions
They have met 3 doctors and XRays are accurate.

MalStrom · May 18, 2024

They need to see a maternal fetal medicine specialist and go to a children’s hospital and see a pediatric cardiologist. Are they in the US?

sanjuruby3 · May 28, 2024

they are in india and so far they have seen multiple docs and top doctors . Results are same and baby has multiple heart problems. Not just hole but also place where gap should be there, it is contracted. ( Tetralogy of fallot) Sorry I do not even know or remember the terms.
Doctor said baby will have to have multiple surgeries and under watch. Can not do sports, and heavy things. They also mentioned life expectancy.
Mother is going to start 6th month soon and we all are heart broken. Gyne was talking about aborting. Some relatives as well.

MalStrom · May 28, 2024

sanjuruby3 said: ↑

they are in india and so far they have seen multiple docs and top doctors . Results are same and baby has multiple heart problems. Not just hole but also place where gap should be there, it is contracted. ( Tetralogy of fallot) Sorry I do not even know or remember the terms.
Doctor said baby will have to have multiple surgeries and under watch. Can not do sports, and heavy things. They also mentioned life expectancy.
Mother is going to start 6th month soon and we all are heart broken. Gyne was talking about aborting. Some relatives as well.
Click to expand...

Relatives need to shut up. Sorry not sorry for being blunt. This is a matter between the parents and their doctor. If people can’t be supportive then they can zip it. Tell your brother not to discuss too much with others.
Fetal and neonatal medicine have made great strides. They should listen to their doctors and follow their advice.

MalStrom · May 28, 2024

Here is some information about the condition:

Tetralogy of Fallot - Symptoms and causes

sanjuruby3 · Jun 3, 2024

Relatives are actually quiet and speak only when/what needed to.

My brother/wife are so confused, they are asking everyone what to do. Mostly no one saying or suggesting anything.
They are so confused.

I am here to ask if anyone has such /similar case known, if miracles happened post birth.

Jollylife · Jun 6, 2024

hi ...
i think its more than 15 days since the post. but logged in after very very long time to post

Best is to discuss/talk to doctor and listen to what they say.
They are the only people who really knows/understands such issues. And they are the ones who have seen so many various cases/conditions.

the test/scan during pregnancy is to have safe and health baby. It is recommend to listen to their advice and follow them.

Sharing my experience from a mothers point :
My child was born normal with no issue reported during pregnancy/post birth check ups.
But on 5th week , when we had gone for regular check up, the paediatrician said the child seems to have heart murmur and due to which the child is crying heavily and need to meet pediatric cardiologist and need to do echo/and other tests. She bluntly said next 24 hours if baby cries very hard/or any colour change to blue/black near eye brow/nails or skin need to rush to emergency. The next one week was meeting doctor after doctor.
Luckily the test came out normal.
But to think of doing such tests on new born itself is very very painful. and every time baby cried until 1 year or 2 year I used be really worried and kept praying nothing worse should happen. it was really nightmare.

Please listen to doctors advice they are best people to guide.