1. Want to be a Positive Parent? : Click Here
    Dismiss Notice

Infantile systemic hyalinosis

Discussion in 'Infants' started by nimnik, May 30, 2013.

  1. nimnik

    nimnik Silver IL'ite

    Messages:
    113
    Likes Received:
    52
    Trophy Points:
    68
    Gender:
    Female
    Hi ladies, does anyone knows abt this condition .. My friends 8 months old baby is having it .. Need to know if there are good docs around banglore or chennai who can treat this.
     
    Loading...

  2. Rakhii

    Rakhii Moderator IL Hall of Fame

    Messages:
    7,299
    Likes Received:
    6,339
    Trophy Points:
    440
    Gender:
    Female
    I am not familiar with this but a quick google search shows that its not a common thing. I am so sorry to hear this.
    Apparently it affects the tissues and spreads to one or many parts of the body. Can be painful too. The prognosis doesnt seem very encouraging and I am so sorry to say this.

    Did she take the baby to any big hospitals? Like Apollo? If they dont provide treatment there, perhaps they can refer the baby elsewhere they do provide the treatment. Early intervention of course helps a lot.
     
    1 person likes this.
  3. ramyaramani

    ramyaramani Moderator Staff Member IL Hall of Fame

    Messages:
    3,924
    Likes Received:
    1,808
    Trophy Points:
    308
    Gender:
    Female
    @nimnik Very sorry to hear about your friends baby. Honestly it is going to be a long road towards recovery. Has the baby's milestones been delayed? Check for dermatologists who specialize in pediatric dermatology.
     
    1 person likes this.
  4. Dinny

    Dinny IL Hall of Fame

    Messages:
    6,035
    Likes Received:
    8,030
    Trophy Points:
    438
    Gender:
    Female
    i know you asked for chennai and banglore but i still hope this is of some help
    Because its a rare disease i found few doctors some in mumbai and some in kolkata try thses

    Bhushan Madke,Siddhi Chikhalkar, Uday Khopkar
    Department of Dermatology, Seth GS Medical College and KEM Hospital, Parel, Mumbai, India.


    Giri PP,Raushan R,Ghosh A,Pal P,
    Department of Pediatric Medicine, Institute of Child Health, Kolkata 17

    If you want i can PM you the email id of one of the doctors.


    Nimnik i found a doc's name in chennai
    S Suresh,chief medical director of MediScan
    He might be able to guide your friends to the right doctors.
     
    1 person likes this.
  5. nimnik

    nimnik Silver IL'ite

    Messages:
    113
    Likes Received:
    52
    Trophy Points:
    68
    Gender:
    Female
    thanx all.. yeah we know that its gonna be really tough for all of us..

    Dinny : thnx much for the nmes..i'll PM u in some time to get the details.. now rushing to meet a doc here.. lets see what he says..
     
    1 person likes this.

Share This Page