You know, i notice that when i show worry or concern the immediate reply is, "go to the ER" Once they are fixated on go to ER, it seems they won't answer further. Well, this was the case of one MD who was monitoring my Dad's Heart Monitor Right now i am doing research online as well. I have to search once, twice, thrice, etc. Because it is easy to fall into a rabbit hole of wrong diagnosis and get even MORE worried. Lot of websites say patients will feel better after TAVR. Other websites they will feel aches and pains in chest, back, shoulders for 2 to 6 weeks after the procedure. And all these websites are from Medical Hospitals. I will try to reach out to the Nurse Practitioner again. I need to rehearse what I say because at this point after TAVR, it almost seems they are done with my Dad (not that they are bad people, they have a pipeline of patients going through TAVR). I just hope with the Nurse Practitioner experience with a pipeline of Patients they can provide better guidance. And reassurance
Please let me clarify, i am polite to the Medical staff. When i was writing last night, I was expressing my frustrations to my IL family. It seems lot of people may think I was being rude to them I learned from nearly 6 years of experience to be nice to everyone. Even if they are nasty to me. If an injustice is done, i learn to escalate to proper departments and get it resolved (i.e. Health Insurance doesn't follow their contract and allows double-billing). But I digress. You are right when you say control my emotions in front of Dad. Today i was so distressed I kept going in his room for a hug. i was crying on the inside. I am totally cried out. I am totally angered out. I guess my Dad is resigned to the fact that some people act a certain way in life (i.e. few bad apples in the medical profession), and there isn't much he can do in certain situations. One and half months to normal life? That looks very positive. On several website it says 3 months for TAVR, and 6 months for ope-heart surgery. Of course i am not suffering, my Dad is suffering and even one day is one day too much for him.
Oh my, abdominal surgery! That sounds really scary. I cannot imagine the agony you went through. I am happy you recovered. And my Dad is hesitant to take any medications. But the pain was so bad that he yielded and is taking Aleve which is least dose and least harmful. When I spoke to Cardiologist today he says Dad should take 2 tablets every 6 hours as needed. No more than 8 tablets in 24 hours period. As soon as he feels better taper off slowly. In my un-medical opinion, I think he tapered off too quickly I will ask the Doctors to present a realistic picture of Dad's recovery and red flags. It seems he was unusual patient 1. On one hand he cried horribly when being stuck with needles 2. On other hand, TAVR surgery progressed perfectly like they describe in medical books 3. Initially Dad was slow to come out of anesthesia, and he was very sensitive to it. We were scared it was stroke and I panicked and tried to explain Dad's history and what he was trying to tell Nurse.
If I see i need to move, i move Sometimes, esp under duress (i.e. stroke scare after Heart surgery) these simple things are not obvious. I had difficult time understanding where the ICU was. I had to ask 3 people. When I wanted to follow my Dad to walking for Physical Therapy, a nurse asked me to wait in the room and i did so. I understand to cooperate with all medical staff. Oh definitely. Lot of times if I cannot figure it out, I ask Dr where to move. Usually they are fine with where I am staying. I'm not saying that ILites are like my nasty ex, absolutely not i am saying they have similar bad experiences and are still stuck in that situation, hence they have different view, i.e. why care about a male in pain when male doesn't care about his female counterpart who is in pain. Lets say my Dad abandoned me like others told him to. And then I had experience with a nasty ex. If someone was posting about caring about their Dad's pain and getting angry at those who belittle them, I think I would also say, "WHO DO YOU THINK YOU ARE?" and "LET MEDICAL PROFESSIONALS DO THEIR JOB" I hope I clarified, please advise.
Hugs to you. Usually doctors give a timeline of recovery and with heart surgery, even bistanders are educated on how to deal with it( not sure if it varies with hospital ).If not, you can still ask his doctor about it. May be that will relieve your stress. I have mentioned one and half months, the time to stop pain killers and healing of wounds if any. But each patient and case is different. So, please explore. Please note that Ilites are giving you practical suggestions in different angles. It doesnt mean they are blaming or finding fault with your approach. May be validation is more comfortable to you or that you needed, but be open to suggestions and think that way too. That will give you different pathways to approach your problem.
Thank you for the {{{hugs}}} I can use advice from different angles Somehow I need to untangle my Dad's suffering from past injustices which he defended and rescued me from- hence I over-react to some comments here Hope I can reach the TAVR Nurse Practitioners tomorrow, else Wednesday
@SuiDhaaga, You have to have your priorities right: Your #1 goal is to get your dad recover from his illness as quickly as possible. Your #2 goal is to let the caregivers provide your dad what is needed to cure him quickly. Your #3 goal is to facilitate making your dad as comfortable as possible. If you have to get your dad recover from his illness quickly, you have to make notes on all of the advises of the caregivers and follow it meticulously. You can't pick and choose. Whenever you say your dad will die than going to ER, it is a conflict. If he needs to go to ER for some reason, are you going to listen to your dad and keep quiet or will you bite the bullet and take him to ER as advised by the hospital? Some patients do have higher tolerance for the pain while others don't. You can't sweat on needles and pricks at this point in time and you have to let the caregivers do whatever is needed to be done. The caregivers of your dad have only one goal to get your dad recover quickly. Sometimes, they have to address his health and other times, they have to address his emotional reactions. You can't interfere in every one of their actions. When you write bad about them here in IL, sooner or later, it will show up in all your interactions with the caregivers. If you are not satisfied with the caregiver, you need to discuss the options with your surgeon. But if he suggests your dad has to go to ER, you should be in a position to listen. The caregivers will say what is right for the patient's health and not what you or your dad would like to hear. You need to really calm down in the best interest of your dad. If he suffers from pain, you tell him he will be alright soon. Take down all that your dad is reporting and ask all the questions first thing in the morning when you talk to the caregiver. Give them 24 hours before you ask the next set of questions. Ask them what you need to consider as an emergency and unless such things you encounter, you should not panick. They will be able to say one or two things as emergency situation. Because they are all so busy, they prefer patient's caregiver at home to be more organized and systematic. Only time, you need to interact with them is when you have questions. Leave them to treat your dad and don't be in their way.
i though they give morphine for such extreme pains and even prescribe a little if they can. may be not sure . rest cannot say anything. try to find some therapy for yourself. it is taking a toll on you
Doctors know better to give or not to give morphine to the patient. But, it is harmless to ask for it, and understand why it is not given or given only a smaller dose which is not adequate to relieve the pain. When I went through a major surgery last year, i was in terrible pain post surgery which was nearly unbearable. I even cried loud and could not think of anything as the pain was so much. I had undergone 2 c-sections in the past, but never felt such unbearable post-op pain. I was always on pain killers until I was fully healed. So, this one was too confusing; hence we asked the doctors about it. My doctor said, he feared some unusual internal bleeding and wanted to keep me conscious for 12 hrs post - op. Therefore, he has prescribed a very mild dose of morphine for the time being. counting my times for the next dose of morphine was the worst of all I have experienced in my life till date. Holding my mom's hand and having my family caressing my head was the only pain killer that moment. Lesson learnt from that incident is: Ask your doctor. Sometimes they have a reason, sometimes they do mistakes. It is harmless to ask. Be with the patient and give physical touch. This is a miraculous pain killer at times of extreme pain Be patient... This too shall pass. Even though the waiting time may seen indefinite, it shall pass.
They give morphine in the hospital immediately after surgery. They put it in the IV for me and I had to press a button to get a fresh dose. It was very controlled and I could only press the button a certain number of times per hour. If I felt I needed more I had to summon the nurse. Once you are discharged these days you only get regular painkillers, usually. Controlled substances now involve a lot of extra paperwork for the medical establishment so they are reluctant to prescribe it unless absolutely necessary.