Baby Has Heart Problems, What To Do:-(

They need to see a maternal fetal medicine specialist and go to a children’s hospital and see a pediatric cardiologist. Are they in the US?

 

Relatives need to shut up. Sorry not sorry for being blunt. This is a matter between the parents and their doctor. If people can’t be supportive then they can zip it. Tell your brother not to discuss too much with others.
Fetal and neonatal medicine have made great strides. They should listen to their doctors and follow their advice.

 

Here is some information about the condition:

Tetralogy of Fallot - Symptoms and causes

 

hi ...
i think its more than 15 days since the post. but logged in after very very long time to post

Best is to discuss/talk to doctor and listen to what they say.
They are the only people who really knows/understands such issues. And they are the ones who have seen so many various cases/conditions.

the test/scan during pregnancy is to have safe and health baby. It is recommend to listen to their advice and follow them.


Sharing my experience from a mothers point :
My child was born normal with no issue reported during pregnancy/post birth check ups.
But on 5th week , when we had gone for regular check up, the paediatrician said the child seems to have heart murmur and due to which the child is crying heavily and need to meet pediatric cardiologist and need to do echo/and other tests. She bluntly said next 24 hours if baby cries very hard/or any colour change to blue/black near eye brow/nails or skin need to rush to emergency. The next one week was meeting doctor after doctor.
Luckily the test came out normal.
But to think of doing such tests on new born itself is very very painful. and every time baby cried until 1 year or 2 year I used be really worried and kept praying nothing worse should happen. it was really nightmare.

Please listen to doctors advice they are best people to guide.

 

Dear OP,
So sorry about the loss. I know it is hard. Much more harder on the child's parents, especially the mom who carried the child this far. So, whatever the outcome, stand with them during this hard time rather than judging their choice.

Faith is something. Science is something else.
My brother was born with weak legs, and he could not walk even after turning two. Despite of seeing so many doctors, not just in Sri Lanka but also in abroad, his condition remained unchanged and made my parents feel hopeless about his future.
But, miraculously he started walking one day, and his condition improved drastically. My parents call this as power of prayer or power of God and they are still thankful for this. My brother calls it a medical miracle, as in most cases the doctors give 5-10% chances of improvement. He believes his case was one of them, and today he is a very strong man.
No one can predict anything. Not even science.
So, I wouldn't blame the girl's family for staying hopeful despite the negativity. But poor them. They lost the kid.

I experienced almost everything you have explained above with my second born child - DD.
It was a nightmare at that time, and I remember taking the 10 day old child to a paediatric special hospital to do echogram some 100km away, that too following a tough C-section. All I remember today was the Good news from the Dr, who calmly explained why they heard the murmur at the first place, and why the test came out normal now. Whatsoever, I felt relived and started enjoying the childbirth only after that moment.

I hope the new parents (OP's brother and wife) will be blessed with a healthy baby very soon.