My Life Journey With My Special Kid!

Everything is going good! wanted to share the food habits of my Boy. He is a very good eater. When he was an infant he had a very bad reflex and identified with acute gastroenteritis. So food became very limited. Whatever he eats he was vomiting. OMG, i dont want to go back to those days. very tough days. We are vegetarians so its a very usual food like rasam, sambar, idli, dosai, chappathi. He was in the medicine left and right tried ayurveda, allopathy,....At last when he was 4yrs i took him to a Dr. cured his reflex just by food habits. He asked me to stop all the medicine and asked me to give him only cream of rice with methi, garlic and cumin that too whenever he is hungry. So basically my Boy was a slow digester, so giving food time to time was not working. and also time is very important. Before 9 breakfast,before 1.00 lunch before 7.00 dinner. So accordingly I planned the day and started with cream of rice and slowly included all of the food which we all eat. it took almost 6 months to completely stop the reflex, bloating, etc...now we all in the family following certain restriction in the food like no ghee, no deep fries of any kind, no potato chips, no biscuits or cookies. now I am really blinking how to stop giving them bread because bread has lot of preservatives which we do not want to consume. So basically all fruits, veggies, rice, sprouts, oats, nuts and dry fruits. So now i know the trick how to deal with him when his belly starts react.

My Boy is now happy to eat any food. While when he was the dieting process he stopped snoring which surprised me. I am so proud of My Boy!

 

Not yet Rakhii. I have to try that. I don't want to use all purpose flour. I want to use whole wheat flour. Can you tell me how she bakes?

 

Laks, good to know that you explored more. Its always good to keep in touch with other native parents so that they know in and out and all the tricks, in school and also to get the appropriate services. That's what i learnt in all these years. Good that you are keep in track of his development. Ans also I am glad that he is very well settled in the current school set up. I am happy for you! Thanks for the link. Me too! very nice sharing here.

 

Still my Boy has running nose. But able to manage to go to school. Let me share his behavior challenges here. When he was very young he use to do actions for many rhymes and songs. Also happy to play with other kids and his peers in his class room. Slowly that stopped. started doing repetitive behaviors like rocking, jumping and flapping hands, self stimulatory behavior. We brought all these concerns to the pediatrician and she refered to neurologist. We showed up a vedio of his behavior and that dr. said nothing to worry. then again we expressed our concern to pediatrician and the school. Pediatrician said its a down syndrome kind of behaviors and once he grow big these behaviors will vanish. I dont know who is unlucky here, its actually because of Autism, my Boy's social is completely stopped, all his interaction with us becomes very limited to food and music, those repititive behaviors .....all related to Autism. i feel very sad while writing this.... anyways somehow we were able to get the provisional diagnosis.

The saddest part is our insurance is self funded and they excluded autism services COL!. So patiently accepted the second diagnosis and also another 4-5 months delay in getting the services.

But I am spending sometime with my Boy alone and working on the imitation. Not going to give-up. He is a very good learner and he is working very hard in imitation. So I am happy for him.

 

My boy is better now. Feeling good. Very happy improvement is he is imitating all 26 alphabets and 1-10 numbers. Also showing interest in repeating other words. As i said he is very good learner, now he is picking up a lot more in verbal communication.

Here i wanted to share his physical activities. He loves Trampoline!!When he is so excited about something or when he gets what he wants, he wants to really show his happiness through jumping. He will smile and laugh and his eyes glows like a Sun. But apart from jumping on trampoline his jumping height and ability is very limited. He is able to jump down in the stairs but now he is jumping up from one step to other step in the stairs by holding my hand and the rail which is good thing to move forward. Walking pattern is like gait pattern. Bicycling, he is not ready. But i am thinking to try this summer. In the playground setting, he is very happy is the swing. No time limit for him in the swing he loves it. But unable to swing on his own. Also he was happy to play in the monkey bar but in the last summer he didnt show much interest. when i lifted him up and asked him hold the bars but he didnt want to do that. So i just left it. He is a very good runner. He runs very fast. He loves somebody chase him. So i am working on running with him in the track and teaching him the race. Otherwise still receiving PT at school hope to see more improvements.

 

Thanks Spring. Very encouraging.