Editor's Note: Thank you Swethasri for sharing your story with us. It has been chosen as the Best of Forums and to celebrate Parent's Day at IL we have chosen to feature your story as an article here. -------------------------------- Hi all , Hope you are all doing very good in the hands of God. I wanted to share my life journey with my special kid who is with Down syndrome. Writing here is just like I am sharing everything to my Mother. You can call this as a vent or sharing or giving information about few things or teaching how your life will change after a Special gift given to you by god. Any questions, comments (Please avoid too much of negative comments) and want to share any kind of resources which would benefit others are very welcome. Thanks. I got married to a very well dignified and educated family. It was an arranged marriage. My husband is very loving and caring person till date even after lot of challenges. Everything was fine for the first 2.5 months and then all kinds problems started like relatives interference from my side which leads to very bitter arguments. I got pregnant with my first child after 9 months of marriage. Even during my pregnancy lots of fights, disrespectful arguments, disagreements, insulting my husband, misunderstanding between me and my husband ........ unimaginable. Without my knowledge I was also part of it and many things hided to me by my maternal relatives. But whatever reason I give I lost that beautiful loving relationship with my husband which is awfully inconsolable even now... So I delivered my boy and after 2 months he was diagnosed with down syndrome!!! Initial cry, non-acceptance, guilty and top of everything the fights and misunderstandings. In both of our family, we don't have anyone with intellectual impairment. My boy is the only one so we were in shock and all those initial stress.... So I joined my husband back to his place when my boy was 4 months and a pediatrician referred Early intervention. From there all kinds of struggle started. But I always thank God that he gave me a wonderful very special gift which many ladies praying who want a baby after 5 years, 10 years,15 years of marriage. I always thank Him what he gave me. I learnt lot of things about the people, society, how they differently see my child and especially my relatives. I was in touch with them but somehow started getting away from them slowly. Reduced going to any kind of functions like marriages .....Gave high priority to my boy. I was like convincing myself, its all because of KARMA we have to face all these things. Anyways coming to my boy,he was delayed in all milestones like creeping, crawling, walking, ...when he was around 2 years we moved to United States. Again a life changing but in a positive way. Felt like God did not close all the doors. He opened this opportunity and we were able to breathe little from all congested extended families. I am very very thankful to God that he gave me this opportunity as I always. So here in US till 3years old Early Intervention happened at home which means all the therapists come home and do the services. I do see a very big difference in the society. the awareness level is very high and people are very happy to welcome my boy and accept as a human being which gives me a very big relief. God heard all my prayers! My boy completed 3 years then he started going to the public school and he was on 1:1 and also whatever therapies he was receiving in the EI continued in the school. He was doing pretty well in social, physical, but not very good in communication so he was continuously receiving Speech therapy. I did small analysis about my relatives and at one point in time I completely disconnected my maternal and paternal relationship including my Parents. Some how I don't have any kind of regrets that I disconnected them. Because my husband was always with me as a very positive support. So I was relieved from one big stress by disconnecting them which I am completely out of guilty. I am happy that I did it! So my boy slowly moving away from other kids and doesn't want to mingle with other kids. Started some kinds of repetitive behaviors. When we talked about it with the pediatrician they said its a down syndrome kind of behavior once he grow big then he will stop doing this. but he is not very much progressing also so we are complaining to the school about his less progress and asked them to increase the therapies and they kind heartedly agreed after a lot of advocate. But still he was delayed in speech in the level of 2 year old boy. But he is now 8 years old and still struggling in communication. So very recently he was diagnosed with Autism so its a Dual Diagnosis! Another big challenge! That's why he is not progressing much and also his negative behaviors interrupting his academics and day to day skills. So currently we are exploring more resources and trying to get help for my boy who can do his daily living normal to some extent. We moved to a different town and the school system is really pushing back and wants to reduce services. we need to advocate for more services because of his Dual diagnosis and he is still non-verbal. So its a struggle. Its not very easy to have a special child at the same time I do see many positive with my boy. His innocence, his smile no one can have. as a normal people we always cry for more even though we have million dollar but my boy or any special kid, he is non-verbal he don't criticize others, he don't hurt others, he don't bully others, he don't judge others, he don't gossip about others. At the end of the he is very happy and he makes me SMILE! from all of the stress. I am so happy to be a mom of my boy. He is so special to me. I want to continue to write here how I deal with him everyday and how he is doing with his little brother and also how I am dealing with him. Everything so that other new mothers can benefit from here. OMG such a big post! Thanks for reading ladies after this my posts will be very short. Share your thoughts. Thanks.